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Bev, Your right, the decision making has been beyond difficult. What's really pushing me is the pain I have in all areas of my breast & axilla. I keep thinking those 4 masses they found have to be causing this and it worrisome. Plus the fact I CAN'T have radiation. That alone plays a big part in my decision. I see it as a preventative measure.
(Something has to be causing this pain and my breast to be so enlarged?) I've been complaining of pain now for 4 months & its only gotten worse.
The first time around when I was DX and had a MRM...I had the blue dye injected as you mentioned. It would seem my surgeon could inject that and when he is doing my simple mastectomy he could see at that time if any lymph nodes where involved? If he found that they were he could go ahead and do what was needed then verses having me go through this all again. I just wonder what the standard protocol on this would be?
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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