HER2 Support Group Forums - View Single Post - Help! Stage 4--Liver Mets

StephN · 02-05-2007, 01:17 PM

- in Houston. I am sure that being so close you know about this top ranked cancer center.
My thinking would be to start close to home and see what they suggest. Your sister's oncologist must know some of the docs at Anderson, and can get her an appt over there. Seems to me she needs a second opinion anyway.

Looks like she has not had Zometa or anything to help her bones. They can also perhaps do CYBERKNIFE on bone tumors.

I am surprised the way they have jumped her around from drug to drug. Are they sure that some of the "tumors" are not now scar areas? PET/CT lighting up as before?
What about the HER2 serum test? This would also have been a good way to see what the treatments are doing.

02-05-2007, 01:17 PM	#2
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Try MD Anderson - - in Houston. I am sure that being so close you know about this top ranked cancer center. My thinking would be to start close to home and see what they suggest. Your sister's oncologist must know some of the docs at Anderson, and can get her an appt over there. Seems to me she needs a second opinion anyway. Looks like she has not had Zometa or anything to help her bones. They can also perhaps do CYBERKNIFE on bone tumors. I am surprised the way they have jumped her around from drug to drug. Are they sure that some of the "tumors" are not now scar areas? PET/CT lighting up as before? What about the HER2 serum test? This would also have been a good way to see what the treatments are doing. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.