HER2 Support Group Forums - View Single Post - Back from Hospital After 2nd Mastectomy

Chelee · 02-04-2007, 12:45 AM

Belinda, Good question. I have no clue what my surgeon is thinking after my last appt with him? I get the feeling he thinks I am over reacting by wanting to continue to find out what this is. He thinks I should be satisfied and just go away. I told him regardless of what we found I wanted a mastectomy. He just pretended *not* to hear me. Argh!

Like you said Belinda...its all about peace of mind. I started off with *only* one mass in breast...now with additional testing we are up to 4 or more. (Add the four or more to the CONSTANT pain and I want this gone.) Plus..he SHOULD take into account...I CAN'T have radiation either.

I have an onc appt tomorrow for my onc & herceptin. I will check in his office while I am there. I already called his nurse last Thurs and told her I'm not happy...I am in pain. I want a biopsy of this and it removed. I told her if my surgeon does not want to do it...let me know now. I told her I will get a 2nd opinion at City of Hope or UCLA asap. She said she would talk to him. All I know is he better be right...all these masses better be benign. They tell me bc is not painful. Ha! I had pain in my right one that was DX last year. So thats not true. Things would be SO PEACEFUL right now had I MADE him do a bilat last year. This is not worth all the stress.

Chelee

02-04-2007, 12:45 AM	#8
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Belinda, Good question. I have no clue what my surgeon is thinking after my last appt with him? I get the feeling he thinks I am over reacting by wanting to continue to find out what this is. He thinks I should be satisfied and just go away. I told him regardless of what we found I wanted a mastectomy. He just pretended not to hear me. Argh! Like you said Belinda...its all about peace of mind. I started off with only one mass in breast...now with additional testing we are up to 4 or more. (Add the four or more to the CONSTANT pain and I want this gone.) Plus..he SHOULD take into account...I CAN'T have radiation either. I have an onc appt tomorrow for my onc & herceptin. I will check in his office while I am there. I already called his nurse last Thurs and told her I'm not happy...I am in pain. I want a biopsy of this and it removed. I told her if my surgeon does not want to do it...let me know now. I told her I will get a 2nd opinion at City of Hope or UCLA asap. She said she would talk to him. All I know is he better be right...all these masses better be benign. They tell me bc is not painful. Ha! I had pain in my right one that was DX last year. So thats not true. Things would be SO PEACEFUL right now had I MADE him do a bilat last year. This is not worth all the stress. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.