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Rinaina,
I am also ER/PR - and have worried a little bit about this myself. I may be wrong about this, so somebody please correct me if I am.
If I understand everything correctly, ER/PR - and +, at a ten year mark, have almost the same relapse rate. The difference being that ER/PR - tend to relapse a little faster (usually in the first 5 years- first 3 especially) and that ER/PR + relapses happen the same way, and can occur a little later also. This is a GENERALIZATION. I do think that it is probably always better to be +, because it gives more options.
The fact is that you are still early stage and most likely will respond very well to the treatments that you have had and may not ever deal with a relapse. Be aware also that in certain studies, involving exercise, diet (low fat), the ER/PR- people seemed the have the greatest benefit. So we are all individual, with pros and cons to our individual dx's. Thank God for Herceptin and for the fact that it has no ER/PR preference!!!!! I also LOVE reminding my hubby that my tumor was not HORMONE DRIVEN since he seems to feel that everything else I do is..... :-)
Love, Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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