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Chelee · 02-02-2007, 11:40 PM

Becky, You certainly know how to break things down & make it so easy to understand. What brought my attention to that one short sentence that said "mixed plateau and in some areas washed out kinetics." I could see on MY copy of this report that the onc had *underlined* that one part. I got concerned because any time something worrisome showed up on my PET/CT scan...I would ALWAYS see it lightly underlined by my onc. (It was never good when I ran across that)

As to this pain...no...I don't rub, touch, & feel it. I really have left it alone. Underneath the axilla it has a slight burn like feeling and pain. The breast pain is a constant too. Its strange how *firm* the breast tissue is. It was never that way. Even the NP that I saw mentioned it was awful firm.

There has been 3 or 4 times they didn't take my concerns serious and I ended up paying for it. I DON'T like going to the doctors..and I don't like tests and scans. I ended up in the hospital for TEN days last time they didn't listen to me. (This is frustrating.)

The ONLY thing I wonder about is my port? Its in that UPPER arm and runs up under the axilla into my chest. I *can't* help but wonder if its not causing a reaction of some kind? Maybe that could explain all these masses that are consistent with lymph nodes? As to pain pills, I take vicoden for pain and it hasn't helped. Also ibprofin on top of it.

Becky, again I want to sincerely thank you for explaining that to me. It helps lessen the stress of all this. Your awesome..what would we do without you? (Don't answer that...I don't want to find out.)

Chelee

02-02-2007, 11:40 PM	#4
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Becky, You certainly know how to break things down & make it so easy to understand. What brought my attention to that one short sentence that said "mixed plateau and in some areas washed out kinetics." I could see on MY copy of this report that the onc had underlined that one part. I got concerned because any time something worrisome showed up on my PET/CT scan...I would ALWAYS see it lightly underlined by my onc. (It was never good when I ran across that) As to this pain...no...I don't rub, touch, & feel it. I really have left it alone. Underneath the axilla it has a slight burn like feeling and pain. The breast pain is a constant too. Its strange how firm the breast tissue is. It was never that way. Even the NP that I saw mentioned it was awful firm. There has been 3 or 4 times they didn't take my concerns serious and I ended up paying for it. I DON'T like going to the doctors..and I don't like tests and scans. I ended up in the hospital for TEN days last time they didn't listen to me. (This is frustrating.) The ONLY thing I wonder about is my port? Its in that UPPER arm and runs up under the axilla into my chest. I can't help but wonder if its not causing a reaction of some kind? Maybe that could explain all these masses that are consistent with lymph nodes? As to pain pills, I take vicoden for pain and it hasn't helped. Also ibprofin on top of it. Becky, again I want to sincerely thank you for explaining that to me. It helps lessen the stress of all this. Your awesome..what would we do without you? (Don't answer that...I don't want to find out.) Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.