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Chelee · 01-26-2007, 08:22 PM

The surgeons nurse called and said the MRI showed the same enlarged lymph nodes in axilla and intrammary nodes and for me to follow-up with my onc. I told her its REALLY painful! She again said to see my onc. I asked if they know for sure whats causing these lymph nodes to be enlarged and the breast pain?

She said no. I said do we know for sure its not cancer? She said "no they don't know that for sure...but now they are rating it a BIRADS 1. I said with the pain it has to be my port or something? She said she didn't know...just see my onc. (I thought since he was my surgeon he would want to biopsy one of these lymph nodes or check my port to see what it causing all this pain?

I called to see my onc and all they said I can do is see the nurse practioner Monday. How come they aren't concerned about the enlarged intrammary nodes in breast and axilla with my bc history? And now onc won't even see me. I am not paying to see a nurse practioner...she doesn't know me or what the problem is. I feel like since I am a stage III'er they could care less about me.

I give up.

Chelee

01-26-2007, 08:22 PM	#10
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	The surgeons nurse called and said the MRI showed the same enlarged lymph nodes in axilla and intrammary nodes and for me to follow-up with my onc. I told her its REALLY painful! She again said to see my onc. I asked if they know for sure whats causing these lymph nodes to be enlarged and the breast pain? She said no. I said do we know for sure its not cancer? She said "no they don't know that for sure...but now they are rating it a BIRADS 1. I said with the pain it has to be my port or something? She said she didn't know...just see my onc. (I thought since he was my surgeon he would want to biopsy one of these lymph nodes or check my port to see what it causing all this pain? I called to see my onc and all they said I can do is see the nurse practioner Monday. How come they aren't concerned about the enlarged intrammary nodes in breast and axilla with my bc history? And now onc won't even see me. I am not paying to see a nurse practioner...she doesn't know me or what the problem is. I feel like since I am a stage III'er they could care less about me. I give up. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.