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Old 01-25-2007, 07:13 PM   #14
Sandy H
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Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
Linda is correct, another suggestion!

Ivan, if you are not able to get the info you need from your oncologist you may want to talk to Joe/Christine founder of this site. Their number is 760-602-9178 in California. They have helped several people on this site including myself get into Tykerb trials. It is expected to get approved outside compassionate use within the next 6 weeks here in the US. I don't know about your country. I hope this helps. We will pray for your wife. Sending her a big hug. Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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