Hi Kriss,
First, thank goodness you spell your name with a K! I get so confused with all of us!
Yes, the hair was demoralizing to say the least - as someone else said, it is so visual, and a constant reminder that all is not well! Most of the time you're wearing clothes (at least I was - I never did look so great naked!) so the other "scars" are not always in your face so to speak.
I had a bunch of hats - I mean a BUNCH and I lived in them. See, there's a good side to having chemo in the winter. Found out I looked really good in hats and fortunately I work in a place that gets cold - so lots of people wear hats! I also had several wigs, but mostly I wore the hats because of comfort. Then I could tell people how they should feel special when I wore my hair for them!
My distress about my hair drove my hubby crazy. Yeah, it's just hair, but it is an obvious reminder.
I think when you are done with chemo you should look forward to having fun with your hair! I spiked mine all over and looked really cool. But then I work in Santa Cruz where everyone has spiked hair! At least mine wasn't purple (although I considered it!)
In the meantime, hang in there. Cry if you feel like it but you know that you are much more than your hair!
Take care
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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