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The hair loss was what made it hit home for me as well. I have always had long hair and putting it up in a ponytail was one of my favorite ways to wear it. I stopped the Taxol at the end of June and now have about 1 1/2 to 2" of hair back...and I can't wait for the day I can wear a ponytail again. The other thing I had trouble getting used to was how cold my head felt with no hair. It got to the point that the only way I could get a sound night's sleep was wearing a winter fleece hat to bed.
I know it is hard to believe it now since it is an emotional day for you, but you will get used to not having hair. And, you will probably like how little time it takes you to get ready in the morning.
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Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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