HER2 Support Group Forums - View Single Post - Bone mets to only one site and no other signs of mets?

Becky · 01-20-2007, 04:29 PM

You have really made me think alot so bear with me here. I know that I told you that I got a bone scan about 16 months ago or so because my hip hurt me too. I think part of it for me (hindsight) is that I started a rigorous exercise plan (and I am older than you - 48 now). But my hip started really, really hurting when I switched from weekly Herceptin to every 3 week.

One thing about Her2 protein is that we do need it. Everyone needs it especially if you are injured or healing as cells need to replicate for the healing process. Therefore, if you have aches and pains, theory says it should hurt more if you are taking Herceptin because you are having an immune response at the injury site with more Her2 protein (naturally) present. I think this is why some women get bone pain while on Herceptin (especially the hormone positive women who get pain from their anti- hormonal) - pain from bone loss in this case (I realize this isn't you but I am thinking out loud here) so that is intensified because the body always tries diligently to heal and repair itself.

Give yourself some time to heal (it shouldn't take more than 6 weeks) and get rescaned (whatever method your onc and you decide) and go from there. I have a good feeling that everything will be fine.

Have a great weekend.

01-20-2007, 04:29 PM	#24
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	You have really made me think alot so bear with me here. I know that I told you that I got a bone scan about 16 months ago or so because my hip hurt me too. I think part of it for me (hindsight) is that I started a rigorous exercise plan (and I am older than you - 48 now). But my hip started really, really hurting when I switched from weekly Herceptin to every 3 week. One thing about Her2 protein is that we do need it. Everyone needs it especially if you are injured or healing as cells need to replicate for the healing process. Therefore, if you have aches and pains, theory says it should hurt more if you are taking Herceptin because you are having an immune response at the injury site with more Her2 protein (naturally) present. I think this is why some women get bone pain while on Herceptin (especially the hormone positive women who get pain from their anti- hormonal) - pain from bone loss in this case (I realize this isn't you but I am thinking out loud here) so that is intensified because the body always tries diligently to heal and repair itself. Give yourself some time to heal (it shouldn't take more than 6 weeks) and get rescaned (whatever method your onc and you decide) and go from there. I have a good feeling that everything will be fine. Have a great weekend. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"