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Old 01-20-2007, 08:45 AM   #18
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Kelly


What did your onc suggest? Did he say he would rescan that area in 2 months, 3 months? How often do they run the tumor markers? If they only run them every 3 months, I would ask they run them every time you go in for a Herceptin treatment. This way, you can at least get an idea of how the tumor markers are running. I know we are all probably very much the same in that I know I would really want to be rescanned at some point to observe that area. I also would want some definitive answer that the spot was nothing and (hopefully) what it was. (For example, in my bone scan my ankles lit up. I did do high impact aerobics for years in my early 20's and ran but had no pain or problems). It was definitively ruled as arthritis even though I don't have any real symptoms yet.

Talk to your onc about this and get a forward plan together (ie: when the tumor markers will be run and when another scan will be done - maybe a Pet. How will a diagnosis be made (what I mean here is a benign diagnosis my dear - that this is arthritis, a bruise etc).

I really think this is nothing but personally, I think most of us think one thing when something happens (even a bad cold with swollen glands crosses my mind until I am well again - its natural!)

Rest, eat well and get some exercise and think through what you would like your plan to be and then call your onc on Monday (if you don't have an appointment already set up).

Big hug to you.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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