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chrisy · 01-15-2007, 11:04 PM

Dear Havah
I'm sorry you feel lonely. I think we all do from time to time, lonely and afraid and angry and sad. I don't know the answer to your question, I think (or maybe it's hope) the picture is changing. I do know that SOME people with metastatic disease do beat it. Why not us? Further, more people are living with it as a chronic illness for longer and longer. It is my hope that we can keep it at bay long enough to see a cure.

In the meantime, today we are alive! Although I certainly get down from time to time, I try not to focus on death. I'll feel pretty dumb if I live another 40 years but waste it!

I also agree with Sheila and Mel...the real answers are beyond medicine.

Please take care, you can tell from all the responses that you are not alone, you are held in loving thoughts by your friends and sisters here.

Chris

01-15-2007, 11:04 PM	#33
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Dear Havah I'm sorry you feel lonely. I think we all do from time to time, lonely and afraid and angry and sad. I don't know the answer to your question, I think (or maybe it's hope) the picture is changing. I do know that SOME people with metastatic disease do beat it. Why not us? Further, more people are living with it as a chronic illness for longer and longer. It is my hope that we can keep it at bay long enough to see a cure. In the meantime, today we are alive! Although I certainly get down from time to time, I try not to focus on death. I'll feel pretty dumb if I live another 40 years but waste it! I also agree with Sheila and Mel...the real answers are beyond medicine. Please take care, you can tell from all the responses that you are not alone, you are held in loving thoughts by your friends and sisters here. Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure