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Sandy H · 01-14-2007, 01:37 PM

Havah, as others have said, I am sorry no one responded to your post. I don't remember your post but I doubt if it will ever happen again. I don't have brain, organ or bone mets however, I have been battling skin mets to the chest wall for 5 years now. They are mets on the skin of the chest. I started out with Inflammatory breast cancer, ER/PR neg. but Her2 pos. stage 111b. I was given NO survivoral time 6 years ago!! Well, I am still here with only skin mets which are stable with Tykerb/Xeloda. The only positive thing I had going for me I was Her2 which allowed me to use Herceptin. Don't get discouraged with the stats as I did at first. There are new drugs coming out and treatment options are improving. I can suggest you need to know your body and let your doctor know when something doesn't seem right. Do your research for yourself and be in control like Sheila said. You will get some good help here so keep in touch. Sending you another cyber hug. Sandy

01-14-2007, 01:37 PM	#18
Sandy H Senior Member Join Date: Feb 2005 Location: Norridgewock, Maine Posts: 778	Havah, as others have said, I am sorry no one responded to your post. I don't remember your post but I doubt if it will ever happen again. I don't have brain, organ or bone mets however, I have been battling skin mets to the chest wall for 5 years now. They are mets on the skin of the chest. I started out with Inflammatory breast cancer, ER/PR neg. but Her2 pos. stage 111b. I was given NO survivoral time 6 years ago!! Well, I am still here with only skin mets which are stable with Tykerb/Xeloda. The only positive thing I had going for me I was Her2 which allowed me to use Herceptin. Don't get discouraged with the stats as I did at first. There are new drugs coming out and treatment options are improving. I can suggest you need to know your body and let your doctor know when something doesn't seem right. Do your research for yourself and be in control like Sheila said. You will get some good help here so keep in touch. Sending you another cyber hug. Sandy __________________ Dx. 03/01, Rt. IBC AC/Taxatere Rt. MRM-with graft Lt. simple 5 rads-skin mets Herceptin, taxol, carboplatin (taxol seem to be the magic drug) Navelbine & xeloda (did not work) topical miltex for skin mets Tykerb/xeloda thoracentesis x 2 left lung fluid shows cancer cells Port removal (4 years) with power port replacement Doxil Updated 05-07 Scans show no bone or organ involvement we shall see! I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.