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I am also really interested in this thread -- thanks for starting it. I'm stage 3a, about 19 months from dx. I've had 2 routine scans, and both times had false positives -- the last time I was told that I probably had metastatic lung disease.
After more radiologists' input and then a full CT/PET, they realized that I have radiation scarring on my lung. The experiences were awful and both times lung biopsies were being discussed.
Anyway...next week I have my next check up and will discuss future scanning with my onc. My questions will be just what were talking about here: What's the REAL benefit (if I get mets, will my quality of life be better, will I live longer because of earlier detection and treatment?) of scans. I'll post what she tells me. But I wonder if they don't really know -- for some of us, it might make a big difference, for others it might just interfere with our quality of life now. It might depend on where the mets come, how fast they grow, how we respond to treatment. And no one can predict that.
I'd love to hear anyone else's thoughts and info.
Love
Linda
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