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Old 01-13-2007, 06:11 AM   #7
VirginiaGirl
Senior Member
 
Join Date: Oct 2006
Location: Fredericksburg, VA
Posts: 93
Ann, I have bone mets but can't say for sure what bone pain feels like. I actually don't have any pain, now. What I have had seemed more like nerve pain, lasting various lengths of time and in various places. Stretching seemed to help a lot. And since I started Zometa I haven't had any, so I'm assuming it's helping. The scary thing is that in July when I had my bone scan to restage, it turned up clear, even though the PET & CTs had shown plenty of mets to my spine. Based on others' replies, it sounds like the Arimidex could well be your culprit. I didn't respond to hormone treatment, so I probably will not be trying it myself. Talk to your doctor about switching, and keep us posted!
Peace,
__________________
Liz
3/05 Initial dx invasive dc 2 cm lump, age 39
lumpectomy & 3 of 5 nodes +, ER+/PR+, Her2+++
alternative chemo 5/05-7/05, rad 8/05-10/05
7/06 dx mets to vertebrae, pelvis & chest lymph nodes
8/06 - 10/06 tamoxifen, herceptin, oophorectomy & zometa
11/06 PET/CT showed continued bone mets, new spot on liver
12/06 began taxotere/herceptin 1x/3 weeks,
2/07 - 2-08 NED!
3/08 progression, start taxol/herceptin weekly, monthly zometa
8/08 start ai & herceptin
12/08 - progression, start weekly navelbine/herceptin thru 6/09 & monthly zometa
7/09 - PET/CT showed improvement in spine, but 2-3 lymph nodes in chest became active
9/09 - 11/09 - weekly abraxane/herceptin
12/09 - PET/CT - chest lymph nodes resolved, progression in spine & pelvis
2/10 - 6/10 - start tykerb/xeloda, progession in spine & pelvis
7/10 - start taxotere/carboplatin/herceptin

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