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Becky, Shell and Carolyn
Thank you very much for your responses and suggestions. Also you bring encouragement as I have a 'gut' feeling that Avastin is necessary. I've had it for a while and if things are going south, I will get pushier about that. I am also going to resurrect the process of the Tykerb EAP so at least the process is on.
I was just sharing with my sister yesterday that I wish I could be someone who just didn't need to have all of the information (numbers). I have always been like that my whole life-wanting to know everything and worrying about EVERYTHING. It gets exhausting to be in my head. Anyone have experience with lobotomies .
Any other thoughts and suggestions or happy words are so appreciated, but your ideas help A LOT!!!
Much love to all of you.
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with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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