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Old 01-12-2007, 08:54 AM   #3
Shell
Senior Member
 
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
Joy-

I'm on navelbine/herceptin, but also with avastin, and you might want to explore that.

i was on xeloda, with tykerb at the end, but then i had slight progression, so we stopped in august. it was november by the time scans were done and options were reviewed, and i started on doxil/avastin (i have failed on herceptin, so that wasn't the strongest option for me). i have mets in the lungs and chest, and was having great difficulty breathing, and a constant non-persistant cough. those 5 weeks on that treatment were horrible, such that i declined the 4th treatment and asked to move the ct scan up for then instead. it confirmed my symptoms, and there had been significant progression. that was such a depressing time for me because i had never failed a treatment so quickly, and i too thought my options were too few to be comfortable.

in mid-december we started on navelbine/herceptin/avastin, and things improved a little bit. the cough is a bit better, and i have still have a ton of side effects, but it is easier to breathe (but still very tiring to climb steps). i'm hoping the progress continues.

i will resume tykerb as soon as it becomes available, and i think you should explore that option as well. for the constipation, my doctor prescribed GlycoLax, and i strongly recommend that.

try to stay positive, and i'll keep you in my thoughts for the 22nd. whenever i see your name, it just brings a smile, as i just can't help but think of something that brings joy to me...

kind regards,
__________________
Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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