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Old 01-04-2007, 03:49 PM   #5
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
I am SO VERY thankful they did NOT show me the extent of how the port is placed & works. (I might not of done it had I known all the details.)

No one offerred to show me the port before they put in in....let alone how it hooks up & works. (But at that time I was layed up in the hospital due to low ANC count & they put it in as a last minute thing since I was already in the hospital.)

That being said...I am SO GLAD I had it put in. Its been a saving grace. I was so *against* getting one. But I can't imagine going through all that without one now. Believe me...getting a port put in is SO WORTH it. I really can't see how you will regret it. It makes this whole process so much easier. Its a shame they had to show you all the gross details. But just about everyone gets a port and we are all fine. Sorry they upset you and grossed you out. Maybe they should of warned you first?

I had to go in TWICE just this week for different labs...and it only takes a second to do when you have a port. Without it I would of been there a half hour or more. So you do want one. Hang in there...its not as bad as it looks or sounds.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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