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Kim,
You are not wrong in feeling the way you do. I'm happy that you have completed your year of Herceptin. I can't wait until I reach that point. As you are at high risk for recurrence, as I am, you should insist on a PET/CT scan. My oncologist will order a PET/CT scan for me every 3 months along with my echocardiogram. Once I finish with my year of Herceptin I don't know what she will do. At that point I will insist on a scan at least every six months. If you onc won't order your scan then I would do what Yorkiegirl suggested, go to your primary care physician and him/her order it.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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