HER2 Support Group Forums - View Single Post - Any input on the Tykerb trial is greatly appreciated

cathy34 · 12-05-2006, 09:59 AM

Hi,
My onc. had to refer me to another onc. who is conducting the trial in this area. I live on Long Island, New York. I was on Xeloda in July 2005. It didn't work for me alone but I am hoping w/the addition of Tykerb that it will be a magic bullet. I had my CT of chest/Ab/pelvis this morning and I go for my PG test at 1:15 (the forgot to order this test last week when I had my blood draw). I should be able to pick up the meds this Friday the 8th. I was told that I will take 5 tykerb pills daily w/the Xeloda and I think the study coordinator said I will be taking 2000 mg of Xeloda daily. She did tell me that the other patient in the study had bad diareha and had to have her Xeloda reduced.
I will have CT scans and a ECHO every 6 weeks and see the study onc every 3 weeks for a physical and blood work. In addition to this, I will continue to see my onc. every weeks.
I am really excited and I hope this works because nothing else has...or maybe I shouldn't say that because I have been kept "stable"

12-05-2006, 09:59 AM	#8
cathy34 Senior Member Join Date: Jan 2006 Posts: 30	Thanks to all of you for responding ~ Hi, My onc. had to refer me to another onc. who is conducting the trial in this area. I live on Long Island, New York. I was on Xeloda in July 2005. It didn't work for me alone but I am hoping w/the addition of Tykerb that it will be a magic bullet. I had my CT of chest/Ab/pelvis this morning and I go for my PG test at 1:15 (the forgot to order this test last week when I had my blood draw). I should be able to pick up the meds this Friday the 8th. I was told that I will take 5 tykerb pills daily w/the Xeloda and I think the study coordinator said I will be taking 2000 mg of Xeloda daily. She did tell me that the other patient in the study had bad diareha and had to have her Xeloda reduced. I will have CT scans and a ECHO every 6 weeks and see the study onc every 3 weeks for a physical and blood work. In addition to this, I will continue to see my onc. every weeks. I am really excited and I hope this works because nothing else has...or maybe I shouldn't say that because I have been kept "stable" __________________ Only Positive Thoughts ++++++++++++++ -- Cathy34 Thanks to my wonderful husband Steve....I couldn't get through this without you! Wife and mother to 3 wonderful kids - ages 9, 8 and 3 Dx April 2004 Her2+++,ER/PR--,28lymph nodes removed - 2+, no rads Radical Mastectomy 5/2004 Recrunstruction 10/2004 Chemo .... A/C/T 5 FU Gemzar Avastin Xeloda Navelbine Herceptin Doxil Starting Tykerb Trial Lung Mets