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StephN · 12-04-2006, 01:23 AM

O-o-o-o-o - MJO -
What a thing to say to you about longevity genes! I think I would have looked at him crosseyed and said thank you and goodby. There is no good reason to speak to a patient in distress that way. WHAT bedside manner??? and the idea of thoughtfulness is right out the window.

That aside, I still did not get a trend with your MUGA's. Were they all in the same range until this last one??

Maybe you have some low grade infection and that is why the coughing. It is that time of year when these things are likely to happen. What about air quality? I know that stressers can make the asthema act up. I used to have it too. I think my dietary changes and such have greatly helped my allergies and I no longer have the asthema. It was actually getting better before my cancer dx.

P.S. Someone else mentioned the Coenzyme Q10. I have been taking that since my rads. I take 100 or 200mg per day. I think this has helped my heart hold up to all the drugs. Plus as much exercise as I can muster the strength for.

12-04-2006, 01:23 AM	#8
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Dunk that onc O-o-o-o-o - MJO - What a thing to say to you about longevity genes! I think I would have looked at him crosseyed and said thank you and goodby. There is no good reason to speak to a patient in distress that way. WHAT bedside manner??? and the idea of thoughtfulness is right out the window. That aside, I still did not get a trend with your MUGA's. Were they all in the same range until this last one?? Maybe you have some low grade infection and that is why the coughing. It is that time of year when these things are likely to happen. What about air quality? I know that stressers can make the asthema act up. I used to have it too. I think my dietary changes and such have greatly helped my allergies and I no longer have the asthema. It was actually getting better before my cancer dx. P.S. Someone else mentioned the Coenzyme Q10. I have been taking that since my rads. I take 100 or 200mg per day. I think this has helped my heart hold up to all the drugs. Plus as much exercise as I can muster the strength for. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.