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Heart Sutra
What a great "name" and speaks volumes.
Kevin, your response brought me to tears. Although some partners do not respond well to the stress of this diagnosis, and it can put a strain on even a good relationship, many (most?) feel as you do - you love the person, not the body part. It feels inconceivable that you would even think otherwise.
I, like Sue, am blessed with a loving husband whose love and support I never doubted. Despite this, I NEEDED, and still need to hear that he still finds me beautiful and still loves me.
This diagnosis, with all the associated physical and emotional changes calls everything into question - it shakes the very foundation of all that we believe to be true. We all - patients and caregivers - suffer most to see our loved ones hurting.
In the midst of all this, we seek reassurance that something is still right with the world. Having my loved one tell me AGAIN that he loves me helps put my world back in order.
Thank you for sharing.
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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