Cathy-
I was in the original trial w/ xeloda/tykerb - I received only xeloda at first, but it really kicked back my lung mets...eventually tykerb was added, but it had been about a 15 months on xeloda by that time, and side effects were getting bad for me, and I wasn't as stable as I was so I've since switched.
But, obviously you will want to keep your onc advised of ALL side effects - the diarrhea and the H/F syndrome are the biggies.
www.xeloda.com has a great website, and they list lots of ideas. I only saw my doc every 6 or 12 weeks (remember, it's just pills you're taking), so I used the treatment diary to track my symptoms and to keep track that I was remembering to take all the pills! I would usually email my onc's nurse once a week or two with updates. I had cat scans and echo every 6 or 12 weeks.
When I added the tykerb to the mix, I was extremely fatigued for a few days, but eventually got back to my normal state of regular fatigue...
I used udder cream, and found that to be the best for me - good luck with things!!
When did you have the avastin and what did you have it with? I am having it now with doxil, and am curious how long you were on it and what scans showed during that period for you...
Take care,
Shell