Look, with something as serious as a cancer diagnosis, you deserve a second opinion, particularly when you have lingering questions about the care you are recieving.
Now, if you truely only have DCIS, a precancer that has not invaded out of the breast ducts, there is no need to get Herceptin. PS. Some DCIS is her2+ but if the cancer has not invaded there is no need to get Herceptin unless you do have positive node(s). Now, even if you don't have a positive node, if the cancer has any invasion, you should get Herceptin. I hope this does not sound confusing, but any indication of invasion, either in the node or in the breast as an invasive cancer, does deserv Herceptin if you are HER2+.
Personally, I think a double masectomy is a lot to bite off if you don't need the good breast removed. But, this is a personal choice. They say that new cancers are usually of the same type. So if your other good breast would become cancerous, I would assume it would be DCIS which has a near 100% cure rate.
If you have any questions, email me and I would be glad to help. Good luck and get many second opinions, as much as you need to make an informed choice comfortably.
PS Don't be scared, this group will guide you and hold your hand.
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Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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