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Dear Dee,
Good for you, insisting on getting the abdominal pain checked out!
I know what you mean about reading the "timelines" given to people. If you read on, tho, many times you will see that people are saying this in the context of "but see, I'm still here!!" Think of each one of these as a survival story!
Try not to pay attention to this sort of stuff - focus on what you need to do to fight this, as I know you are doing already! You're clearly not ready to "check out" and you're doing the right thing by arming yourself with as much info as you can so you can choose the next step.
I know (from experience!) that it's easier said than done to ignore the statistics. Maintaining your sanity is important! But it IS true that some women do well for years and years after being told to "get their affairs in order" and several women on this board have outlived their "expiration date" and are still going strong. Why not YOU!
Nobody knows when someone's time is up!
Take care,
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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