[DeeUK]

Thanks ladies. I appreciate every word you're saying, so much.

Chrisy, my original pathology in July 2005, was stage 1, 18mm tumour removed by WLE with clear margins. Grade 3, Er- Pr- HER2+++. Lymph node sampling showed no lymph node involvement, but there was extensive vascular invasion.


The liver secondaries were discovered on an ultrasound abdomen scan, after I complained of pain in my right side.
I saw my GP weeks ago about this, and she put it down to a pulled muscle. When I saw my onc last week, for a routine pre-herceptin appointment, I told him about it, and asked for a liver scan, which he agreed to.

As I understand, it's quite unusual to have pain from liver mets, unless they're large enough to be causing pressure on the liver capsule? I'm thinking 10cm is probably plenty big enough to cause this, but I really don't know much about it. Hearing that one is 10cm, absolutely scared the cr*p out of me. Then there's the other 'small' one.
I'm now hoping it hasn't spread anywhere else, but I'm not holding my breath.
I did have bone, liver & lung scans after my primary diagnosis, and all was clear. So I find it very alarming that a 10cm liver met has appeared already.

I'll ask my onc about liver biopsies, although I'm not sure if they're commonly done over here.
As soon as I know what treatment my onc's proposing, I intend to get a second opinion from Prof Smith, at The Royal Marsden. I saw Prof Smith after my primary diagnosis too, and respect his opinions.


I have looked through a few profiles of people who've had liver mets (on this site and elsewhere), and all I seem to be able to find is people saying they were given 2, 6, maybe 10 months to live. I'm afraid I had to give up at that point, to try and keep a bit of sanity. But I'd LOVE to hear of any good survival stories.
I'm just not ready to accept that I'm going to pop off soon. I have no intention of lying down and letting this beat me yet.


I really do appreciate all your help and advice. I can't thank you enough


Dee
xxx