HER2 Support Group Forums - View Single Post - what is your risk of brain metastases and what are they recommending you do about it?

Lani · 11-17-2006, 10:23 AM

(probably more later, but am too tired right now)

1)The authors pointed out time and time again that because of their country of practice, they were not allowed to do screening MRIs. Perhaps out of exasperation they wrote that to try to force the authorities to allow screening MRIs ie, if you don't we may decide we have to TRY prophylactic WBRT and yes, there are lots of articles on how those with brain mets who get WBRT do. I try not to post those, as there are some on this board who have proved them wrong, and as posting those kinds of informations may harm more than they help. If anyone wants these I could post those with a big yellow warning sign and perhaps Joe should make a new category of posts for scary information which only those who WANT to should see.

These articles follow many people who are pre=herceptin and pre- better combinations of Herceptin with chemos so in most cases they are not even
truly relevant or accurate to our times (except in those countries where people still cannot get Herceptin)

more later...

11-17-2006, 10:23 AM	#16
Lani Senior Member Join Date: Mar 2006 Posts: 4,783	I read the whole article and would like to add a few points (probably more later, but am too tired right now) 1)The authors pointed out time and time again that because of their country of practice, they were not allowed to do screening MRIs. Perhaps out of exasperation they wrote that to try to force the authorities to allow screening MRIs ie, if you don't we may decide we have to TRY prophylactic WBRT and yes, there are lots of articles on how those with brain mets who get WBRT do. I try not to post those, as there are some on this board who have proved them wrong, and as posting those kinds of informations may harm more than they help. If anyone wants these I could post those with a big yellow warning sign and perhaps Joe should make a new category of posts for scary information which only those who WANT to should see. These articles follow many people who are pre=herceptin and pre- better combinations of Herceptin with chemos so in most cases they are not even truly relevant or accurate to our times (except in those countries where people still cannot get Herceptin) more later...