HER2 Support Group Forums - View Single Post - what is your risk of brain metastases and what are they recommending you do about it?

KellyA · 11-15-2006, 10:45 AM

Lani-

Thank you for your help with this. As much as it is not wonderful news, I embrace ANY information that might help me to be as educated and prepared as I can. My dilemma is just what you said- I have an onc. (who I love) that I have been very happy with as far as treatments and care goes. Savannah is a small town, however he came out of MD Anderson and is not only a oncologist, but is a licensed internist and hematologist (although he only practices oncology). I have been very pleased with him to this point and he is very attentive, however he falls into the "no scanning unless symtoms warrant" bunch. I did have scans at diagnosis, which were all clear, but none of my docs would do an MRI, because they felt the chances of mets there before anywhere else would be rare. So I guess now I am in the predicament of weighing all of the risks and deciding how to proceed.

Anyways, I always am interested to read your articles and find them to be very helpful. It is so difficult to find her2 specific information.

Thank you!
Kelly

11-15-2006, 10:45 AM	#6
KellyA Senior Member Join Date: Sep 2006 Location: Savannah, Georgia Posts: 301	Thanks for your help! Lani- Thank you for your help with this. As much as it is not wonderful news, I embrace ANY information that might help me to be as educated and prepared as I can. My dilemma is just what you said- I have an onc. (who I love) that I have been very happy with as far as treatments and care goes. Savannah is a small town, however he came out of MD Anderson and is not only a oncologist, but is a licensed internist and hematologist (although he only practices oncology). I have been very pleased with him to this point and he is very attentive, however he falls into the "no scanning unless symtoms warrant" bunch. I did have scans at diagnosis, which were all clear, but none of my docs would do an MRI, because they felt the chances of mets there before anywhere else would be rare. So I guess now I am in the predicament of weighing all of the risks and deciding how to proceed. Anyways, I always am interested to read your articles and find them to be very helpful. It is so difficult to find her2 specific information. Thank you! Kelly __________________ dx'd 05/06, 37 years old er/pr-, Her2+, grade 3 double mastectomy, immediate reconstruction- implants Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes all scans clear genetic testing- negative 06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin 30 rads Herceptin weekly x 1 year Herceptin completed 08/07 Port removed 12/26/07 MERRY CHRISTMAS!!!!!! 05/17/08 Two year anniversary NED "We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do." -Eleanor Roosevelt