HER2 Support Group Forums - View Single Post - My story...(hope its in the right forum)!

Soccermom · 11-03-2006, 08:54 PM

Dear Steph,
The reason that I removed the other port is because it was actually, a central venous catheter. MDAnderson placed the catheter under local anesthesia (I'll never agree to THAT again,LOL) in Jan 05 and by May when I completed A/C ,Taxol dose dense I was SICK of having to be so cautious all the time. The CVC required much more care (daily flushing,sterile dressings etc) so I opted to swap out to a BARD implanted port.Doc wants me to keep that for another 8 mo. just in case. I will place the link in the "Courage" forum ,thanks for the heads up.

Thank you for the kudos.John Fitzhugh (the photojournalist) was a dear friend of mine before the cancer. He just happened to be the chair for the
Relay for Life in Harrison County Miss. Prior to my diagnosis I always had an informational table set up at the Relays for FORCE. He and his family became part of our family during my treatment and subsequent evacuation. They are just the most wonderful folks.
Rinaina and Sheila, my story is supposed to be representative of every survivors story. I just wanted to be honest and not paint the "pretty picture" that the media tends to favor. John and his newspaper allowed me to do just that. I did take some flak for the "topless" photo, but all in all I hope that maybe,just maybe, one woman paused and reflected on her own family history,or had some abnormality readdressed. It was worth baring my soul for that.

Thanks for welcoming me back. I have been reading alot but not posting too much over the last year. I have a LOT to learn from you all!

Marcia

11-03-2006, 08:54 PM	#7
Soccermom Senior Member Join Date: Jun 2006 Location: Bradenton,FL Posts: 977	Dear Steph, The reason that I removed the other port is because it was actually, a central venous catheter. MDAnderson placed the catheter under local anesthesia (I'll never agree to THAT again,LOL) in Jan 05 and by May when I completed A/C ,Taxol dose dense I was SICK of having to be so cautious all the time. The CVC required much more care (daily flushing,sterile dressings etc) so I opted to swap out to a BARD implanted port.Doc wants me to keep that for another 8 mo. just in case. I will place the link in the "Courage" forum ,thanks for the heads up. Thank you for the kudos.John Fitzhugh (the photojournalist) was a dear friend of mine before the cancer. He just happened to be the chair for the Relay for Life in Harrison County Miss. Prior to my diagnosis I always had an informational table set up at the Relays for FORCE. He and his family became part of our family during my treatment and subsequent evacuation. They are just the most wonderful folks. Rinaina and Sheila, my story is supposed to be representative of every survivors story. I just wanted to be honest and not paint the "pretty picture" that the media tends to favor. John and his newspaper allowed me to do just that. I did take some flak for the "topless" photo, but all in all I hope that maybe,just maybe, one woman paused and reflected on her own family history,or had some abnormality readdressed. It was worth baring my soul for that. Thanks for welcoming me back. I have been reading alot but not posting too much over the last year. I have a LOT to learn from you all! Marcia