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jhandley · 11-03-2006, 04:17 AM

Hi IVW
I guess I am also a long term survivor..(LTS). First dx in 2001; 2cm tumour, 1 node +, ER/PR-,her2 not tested then but when tested 12 months later her 2+.
Went on taxotere trial. NED until 15 months ago when second tumour in breast and 1 liver spot. I am sure 2nd tumour was there in 2001..it didnt show up on u.s or mammo. 15 months ago. Anyway taxol and herceptin and now herceptin alone. NED at 1st scan after tx. Still NED.
I have gone back to fulltime teaching and am just getting on with raising my daughter (nearly 10) and living life to the full...playing cricket, canoeing and learning the fiddle as well.
I get upset a lot more easily now but also find I am kinder to most i meet than i was before.
I am also very careful about use of my (precious) time.

I do the omega 3 thing and Q10 (both cross the blood brain barrier) and olive leaf extract (Gina found this good for bone mets)and reishi mushroom extract(enhances herceptin), I also do the flaxseed muffin a day (reduces her 2 over expression by 70 %), vit B, D, grape juice and dark chocolate.

I find people contact the best thing to "keep the sword from falling" and also with the omega 3 I definately feel a lift in mood after I take 20 ml flax oil, 80 ml skim milk and Milo (choc vit powder).

I have also found a new (old) friend who survived melanoma 15 years ago..coincidentally we had the same surgeon.He was given a 50% chance of surviving 5 years.

I walk every day for at least half an hour again with someone else which helps too, listen to meditation tapes at night.. And of course the old faithful...just take one day at a time.

Cheers
Jackie

11-03-2006, 04:17 AM	#6
jhandley Senior Member Join Date: Sep 2005 Location: Melbourne Victoria Australia Posts: 330	another LTS Hi IVW I guess I am also a long term survivor..(LTS). First dx in 2001; 2cm tumour, 1 node +, ER/PR-,her2 not tested then but when tested 12 months later her 2+. Went on taxotere trial. NED until 15 months ago when second tumour in breast and 1 liver spot. I am sure 2nd tumour was there in 2001..it didnt show up on u.s or mammo. 15 months ago. Anyway taxol and herceptin and now herceptin alone. NED at 1st scan after tx. Still NED. I have gone back to fulltime teaching and am just getting on with raising my daughter (nearly 10) and living life to the full...playing cricket, canoeing and learning the fiddle as well. I get upset a lot more easily now but also find I am kinder to most i meet than i was before. I am also very careful about use of my (precious) time. I do the omega 3 thing and Q10 (both cross the blood brain barrier) and olive leaf extract (Gina found this good for bone mets)and reishi mushroom extract(enhances herceptin), I also do the flaxseed muffin a day (reduces her 2 over expression by 70 %), vit B, D, grape juice and dark chocolate. I find people contact the best thing to "keep the sword from falling" and also with the omega 3 I definately feel a lift in mood after I take 20 ml flax oil, 80 ml skim milk and Milo (choc vit powder). I have also found a new (old) friend who survived melanoma 15 years ago..coincidentally we had the same surgeon.He was given a 50% chance of surviving 5 years. I walk every day for at least half an hour again with someone else which helps too, listen to meditation tapes at night.. And of course the old faithful...just take one day at a time. Cheers Jackie