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kareneg · 11-01-2006, 11:32 AM

Thank you all so much for all your ideas I trulely appreciate this.
I was on the lapatnib trial with herceptin 1000mgs and weekly herceptin. I will ask my doctor about the EAP to add the lapatinib to the mix. I was told my tumors were inoperable but I will ask about the cryoablation .

I have been on herceptin since January 2001, the doctor has never taken me off. I start my second round on Xeloda on Friday, and also get my herceptin treatment. So I am having bloodwork on the 20th and see my doctor on the 21st of this month. I also may ask him to add Taxotere to the mix since I have never had this treatment before.

I am going to write down all of your suggestions and take them with me, this means the world to me all of your support and I love you all and pray for us all that soon there will be a way to live with this horrible monster so we can all get off this rollercoaster.

Please if there are any more suggestion I would deeply appreciate it. Again thank you all so much I feel so much better hearing from you all.

11-01-2006, 11:32 AM	#12
kareneg Senior Member Join Date: Nov 2005 Location: Lincoln, Rhode Island Posts: 371	*Thank you all so much for all your ideas I trulely appreciate this.* I was on the lapatnib trial with herceptin 1000mgs and weekly herceptin. I will ask my doctor about the EAP to add the lapatinib to the mix. I was told my tumors were inoperable but I will ask about the cryoablation . I have been on herceptin since January 2001, the doctor has never taken me off. I start my second round on Xeloda on Friday, and also get my herceptin treatment. So I am having bloodwork on the 20th and see my doctor on the 21st of this month. I also may ask him to add Taxotere to the mix since I have never had this treatment before. I am going to write down all of your suggestions and take them with me, this means the world to me all of your support and I love you all and pray for us all that soon there will be a way to live with this horrible monster so we can all get off this rollercoaster. Please if there are any more suggestion I would deeply appreciate it. Again thank you all so much I feel so much better hearing from you all. __________________ Love and Hope Karen IDC DX 1998 STAGE I ER+/ PR+ AC CHEMO TILL FEB 1999 Tamxofin till 2001 2001 exstensive liver mets and mets to lungs Started weekly taxol Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex 2005 Navelbine herceptin had RFA Then back on taxol with herceptin April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin Feb 2007 started Doxil August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas October 2007 Had to stop Carboplatin due to sever allergic reaction Jan 2008 Stopped Taxotere due to progression now on Gemzar and Herceptin March 2008 Starting Carboplatin, Abraxane, and Herceptin.