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kareneg · 10-31-2006, 08:58 PM

Thanks Bev and Tom,

Here is what has happened so far. As od September 1998, I was diagnosed with stage 1 Breast cancer, had AC Chemotherapy, and was told all was good. Then in August 2001 I was told I was stage IV With several TOO MANY TOO COUNT tumors in my liver, as of then I was put on taxol and retested to see if I was her2pos and I was Fish test was a 10. Then in January 2002 Herceptin was added to the taxol. And was taken off taxol in June of 2002
From June 2002 to January 2005 I was on Herceptin once every three weeks.

Then I started to progress again. Then was put on Navelbine and herceptin,till May 2005. Then started tomprogress again, so doctor put me back on Taxol and herceptin plus Carbo, had a slight reaction to the Carbo in Febuary of this year so was taken off it and continued with Taxol and Herceptin till April and I started to progress again.

Then in June of this year was accepted on the Tykerb trial at Dana Farber and was chosen to have the tykerb plus herceptin. And at the begining of this month on October 4th I was told that the cancer was progressing th etumors in the liver three of them had grown 25%, and I also have lung mets now.
So I started Xeloda on the 13th of this month two weeks on one off 4500 mgs a day. And today I went to the doctor and was told my CA27-29 was now 265. I am scared and so confused. Any thoughts are deeply appriciated,Thanks

10-31-2006, 08:58 PM	#4
kareneg Senior Member Join Date: Nov 2005 Location: Lincoln, Rhode Island Posts: 371	Thanks Bev and Tom, Here is what has happened so far. As od September 1998, I was diagnosed with stage 1 Breast cancer, had AC Chemotherapy, and was told all was good. Then in August 2001 I was told I was stage IV With several TOO MANY TOO COUNT tumors in my liver, as of then I was put on taxol and retested to see if I was her2pos and I was Fish test was a 10. Then in January 2002 Herceptin was added to the taxol. And was taken off taxol in June of 2002 From June 2002 to January 2005 I was on Herceptin once every three weeks. Then I started to progress again. Then was put on Navelbine and herceptin,till May 2005. Then started tomprogress again, so doctor put me back on Taxol and herceptin plus Carbo, had a slight reaction to the Carbo in Febuary of this year so was taken off it and continued with Taxol and Herceptin till April and I started to progress again. Then in June of this year was accepted on the Tykerb trial at Dana Farber and was chosen to have the tykerb plus herceptin. And at the begining of this month on October 4th I was told that the cancer was progressing th etumors in the liver three of them had grown 25%, and I also have lung mets now. So I started Xeloda on the 13th of this month two weeks on one off 4500 mgs a day. And today I went to the doctor and was told my CA27-29 was now 265. I am scared and so confused. Any thoughts are deeply appriciated,Thanks __________________ Love and Hope Karen IDC DX 1998 STAGE I ER+/ PR+ AC CHEMO TILL FEB 1999 Tamxofin till 2001 2001 exstensive liver mets and mets to lungs Started weekly taxol Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex 2005 Navelbine herceptin had RFA Then back on taxol with herceptin April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin Feb 2007 started Doxil August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas October 2007 Had to stop Carboplatin due to sever allergic reaction Jan 2008 Stopped Taxotere due to progression now on Gemzar and Herceptin March 2008 Starting Carboplatin, Abraxane, and Herceptin.