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Carol;
I have been experiencing dizziness as well although not as severe as you. I have had a problem with my heart due to herceptin and was taken off recently due to low muga....41. Although my onc doesn't agree, I believe that the one week treatment is more difficult on the heart and the three week gives your heart a chance to recover. This is also pure supposition but I also wonder if, when you have a low serum her2 and therefore a low amount of her2 in the blood whether herceptin doesn't look around for something to attach to and go to the heart. This might sound silly but I just wonder. This would mean for you that you actually have your disease in control right now and might need a breather from the herceptin. My onc told me to let him know immediately if I experienced any more dizziness as it has been better since I have been off herceptin. I suggest you tell him right away as it could very well be your heart. If so, and if you are taken off herceptin....don't despair....get the serum her2 test and monitor it regularly. IF it's not available where you are....go to the government and try to get special permission to get it there...you will need to find a co-operative lab which uses Elisa.
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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