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StephN · 10-18-2006, 01:33 PM

Sandy - I knew you have had me on your mind. I got home from the hospital early afternoon yesterday. Then I wanted to rest and wait for my son-in-law to drop off my prescriptions as they had not been faxed to the local pharmacy when we stopped on the way home. (Yes, my pain level was going UP!)

The main thing that I know right now is that there is very little "fluid" left in the area of repair. They say that it may even be blood that they see on the scan. I have no weaping or oozing from either the incision area on the back of my head OR where the Lumbar Drain was in my lower spine. They will check that all again the end of next week, when I go for the stitches to be removed.

I turned on my computer last evening and did not get very far when a problem occurred. Just got it sorted out.

So, I hate to use this term, I am "cautiously optimistic" that this repair will be successful. The early signs are good. I had to push the docs to discharge me as they want to make sure I am not overactive and lifting things I should not. My cleaning gal is here today so I am not having to do much. And I really did not think I could stand another day in the intensive care unit.

10-18-2006, 01:33 PM	#3
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Thanks for the concern Sandy - I knew you have had me on your mind. I got home from the hospital early afternoon yesterday. Then I wanted to rest and wait for my son-in-law to drop off my prescriptions as they had not been faxed to the local pharmacy when we stopped on the way home. (Yes, my pain level was going UP!) The main thing that I know right now is that there is very little "fluid" left in the area of repair. They say that it may even be blood that they see on the scan. I have no weaping or oozing from either the incision area on the back of my head OR where the Lumbar Drain was in my lower spine. They will check that all again the end of next week, when I go for the stitches to be removed. I turned on my computer last evening and did not get very far when a problem occurred. Just got it sorted out. So, I hate to use this term, I am "cautiously optimistic" that this repair will be successful. The early signs are good. I had to push the docs to discharge me as they want to make sure I am not overactive and lifting things I should not. My cleaning gal is here today so I am not having to do much. And I really did not think I could stand another day in the intensive care unit. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.