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I, too have pleomorphic invasive lobular, at stage IV with mets to brain, liver, sternum and lymph nodes. I am newly diagnosed with lump found and biopsy in Aug 06 with at least a 16cm tumor - sorry can't remember exactly without looking at my reports too much info in my brain right now but I about fell out of bed when the surgeon told me. - it was 80% of my right breast (36D). Just underwent a right mascetomy, then tissue replacement from abdomen to chest with skin grafts from pubic to chest. The more I learn about this type of breast cancer the more it scares me because it's so difficult to find others with the same thing and I don't know what's in store for me in the future. Right now I wish I could just go back to work so I can concentrate on something else. I start treatment in three weeks and do not know yet what is in store for me. I'm trying my best to keep a possitive attitude though sometimes I slide, as we all do I'm sure.
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Sher
So Far:
Lump found 08/06 right breast.
DX 09/08 Invasive Lobular Carcinoma RB, Stage IV.
9/25 First Surgery - Complete Mascetomy w/expander and port placed.
ER/PR/HER2-, 15/20+
Major tissue damage.
METS to skin, liver, brain, sternum, lymph nodes.
10/3 Second Surgery - fat donated from lower ab and skin grafts from pubic area to chest
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