There's a great book here in PA called "Breast Cancer: Covered or Not?".
It was written by Dr. Linda Rhodes and Pat Halpin-Murphy, President of the PA Breast Cancer Coalition, a political action group here in PA. The book won the 2006 Non-Profit Innovation Award.
Although it's geared in some cases to PA residents, there's a lot of very good information in it about insurance in general, clinical trials, appeals and lots more. I think it is an excellent resource for all breast cancer patients.
You can order the book throught the Coalition at
www.pabreastcancer.org or by calling them at 1-800-377-8828.
I have not yet had a problem getting coverage for herceptin but just had to change my insurance and I'm in my second year of herceptin so we'll see over the next few weeks where I stand.
All the best to you.
Ginagce