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This is one of the most depressing, yet not, threads I have yet to read. I am an 8-year survivor ER/PR+, HER2+++. I had 4 AC and 4 Taxol no Herceptin at the time or since because I do not fit the profiles. I read about all of you taking Herceptin and more Taxol than I did and rads as well and it makes me feel like a time bomb ready to go off. My onc also does not believe in test and scans without symptoms. The problem is I don't know what symptoms I am supposed to look for. My lower back has been hurting (not excrutiating) for months, but I just thought it was old age or something. After looking at this site for a few weeks, I called him and insisted on a bone scan and am waiting for the results as we speak. I have also had a CEA added to my blood tests (already get a CA-15) and am trying to the the HER2serum test as well.
What we have here is whether groups like this are a positive or a negative. Is it better to live happily in ignorance or with anxiety but be better informed? I know I have been a virtual basket case for the last few weeks when before I hardly thought about the cancer except to think I was surviving. The only thing you can control about recurrance is the ability to catch it sooner than later and I guess that's what we all hope will happen with scans and tests. Good luck to everyone, Stephanie
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