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Leslie;
I would definitely ask for bloodwork and scans (you didn't mention if your onc had been doing regular scans over the past couple of years). I would want at least bone scan, chest x-ray, ct scan (MRI or PET would be better?), abdominal ultrasound so that I would be confident that I didn't have any spread anywhere. I have heard here in Canada of onc's doing this sort of thing as they receive patients by transfer. I would also ask for tumor markers including the Serum Her2 test done. If all was good I think I would be content to continue receiving blood work and tumor markers regularly (4 x a year as you are Her2+) and not receive herceptin at this point. If the Serum Her2 test was high I would ask to immediately go on the herceptin though. Please keep us informed.
Best regards,
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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