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Shahyan,
did you also post on the bcmets.org site as "Hina"?? I just replied to you there, if so.
Here is what I wrote:
Hina, If your mom is on Temodar now for her recurrant brain mets, adding
Xeloda to her schedule may help. It has for me for a year now, with my
third recurrance of brain mets.
WBR is normally done just one time. More radiation to brain carries high
risk for permanant damage. I have not had WBR, refusing it for past four
years of brain mets. However, I have reached my maximum amount of
radiation to brain by having five seperate focalized radiation
treatments during that time. Three treatments were like the Gamma Knife,
two were CyberKnife.
There has been several small studies showing response of breast cancer
brain mets to the combination of Temodar/Xeloda. The response rates are
not high, and yet one never knows WHO will respond until you try. I have
been lucky to be a responder. Perhaps your mom would be, too. There is
also some incidental evidence of response from Xeloda alone.
Hope this can be of some help to you and your mom,
best wishes,
pattyz
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