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lu ann · 09-26-2006, 02:10 AM

Thanks for all of your encouraging posts. Millie, the cat, thanks you too.

Regardless of the outcome of the lymph node, I will be continuing some type of treatment, as I'm still battling active disease.

I knew several of you have been treating this area for sometime now, so you give me encouragement.

I have been off of herceptin since Dec. 2005, since she felt that it was not working.

I'm considering asking to go back on taxol, carbo, and herc. if I can't get the tykerb. This combo seems to be the only one that worked. I did not have severe side effects, but my old doc felt that I was having progression in my lungs because of the pleural effusion. My scans looked stable and my ca15-3 was down to 22, normal being 33<.

Counts started to climb with navlebine,herc. combo and gemsar,herc. combo. I'm not sure what they are now, but they were over 100 spring 2006. Counts were 345 before treatment was started Feb. 2004.

I think she is doing everything to make my case a priority for tykerb. I felt great on the xeloda, so hopefully the combo won't be too toxic.

My CT scan is 09/27, Muga 09/29, and Bone scan is 10/03. I'll let you all know when I find out. Thanks again for all of your support.

Love and Blessings
Lu Ann

09-26-2006, 02:10 AM	#20
lu ann Senior Member Join Date: Nov 2004 Location: Streetsboro, Ohio Posts: 365	Thanks Thanks for all of your encouraging posts. Millie, the cat, thanks you too. Regardless of the outcome of the lymph node, I will be continuing some type of treatment, as I'm still battling active disease. I knew several of you have been treating this area for sometime now, so you give me encouragement. I have been off of herceptin since Dec. 2005, since she felt that it was not working. I'm considering asking to go back on taxol, carbo, and herc. if I can't get the tykerb. This combo seems to be the only one that worked. I did not have severe side effects, but my old doc felt that I was having progression in my lungs because of the pleural effusion. My scans looked stable and my ca15-3 was down to 22, normal being 33<. Counts started to climb with navlebine,herc. combo and gemsar,herc. combo. I'm not sure what they are now, but they were over 100 spring 2006. Counts were 345 before treatment was started Feb. 2004. I think she is doing everything to make my case a priority for tykerb. I felt great on the xeloda, so hopefully the combo won't be too toxic. My CT scan is 09/27, Muga 09/29, and Bone scan is 10/03. I'll let you all know when I find out. Thanks again for all of your support. Love and Blessings Lu Ann