HER2 Support Group Forums - View Single Post - Bone mets to only one site and no other signs of mets?

StephN · 09-21-2006, 12:03 PM

I have two good friends who are fighting continually their stage 4 disease for about 5 years. One had a met in her arm and had no really bad pain until the bone broke due to growth of that met. As has been said - it had to start somewhere. Now she still fights a slow spread, containment, slow spread in other areas, change of treatment routine for years.

My other friend has a spot on her right rib near the mast scar that has come and gone for years. She later developed a couple of lymph nodes in a really bad spot way up under her arm that grow and shrink. She is finally on some harder chemo now with Avastin to see if that will put a halt to these mets.

So, your chances could go either way as in the case of the friend with the rib area her markers are not bad most of the time unless the nodes are acting up.

Best of luck that the spot will NOT light up. I had a very painful rib after Taxol and the scan showed no enhancement. It got better.

09-21-2006, 12:03 PM	#9
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Bone mets, one site - yes I have two good friends who are fighting continually their stage 4 disease for about 5 years. One had a met in her arm and had no really bad pain until the bone broke due to growth of that met. As has been said - it had to start somewhere. Now she still fights a slow spread, containment, slow spread in other areas, change of treatment routine for years. My other friend has a spot on her right rib near the mast scar that has come and gone for years. She later developed a couple of lymph nodes in a really bad spot way up under her arm that grow and shrink. She is finally on some harder chemo now with Avastin to see if that will put a halt to these mets. So, your chances could go either way as in the case of the friend with the rib area her markers are not bad most of the time unless the nodes are acting up. Best of luck that the spot will NOT light up. I had a very painful rib after Taxol and the scan showed no enhancement. It got better. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.