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Johnnag85 · 09-16-2006, 11:12 AM

I appreciate your support, I have not been sure which way to go from here. My Med. Onc has said I need to wait for 2 months to get the PET scan again to see if the nodules- which are all less than 1cm,- most are a couple mm - get any bigger. ( Like I want to see that, before doing something about it. ) I will call and ask about the PET/CT Fusion Scan, I am not sure I know what that is, different from what I had before?

I am HER2 Positive 3.

I know the heart strength went down from Herceptin use, as soon as I went off, it went back up. The shortness of breath started with that. It is much better than it was, when I was on the Herceptin.

They think the hand numbness is from the Taxol- although it got worse as I used the Taxoifin and Herceptin. Swollen hands and feet due to Tamoxifin-so they say.

I had asked about the tykerb, but they said that was for post-menapausal?? Although, I have not had a period in a year, now. I dont know if they have any plans about putting me back on Herceptin- My Med Onc said it was not protocal for my age???

How do they do a lung biopsy?

What should I do if my Med Onc says he wont put me back on Herceptin since I stopped it? I remember having that discussion with him, beforehand.

Thanks in advance for all of your help!!

Sincerely-Johnna

09-16-2006, 11:12 AM	#4
Johnnag85 Member Join Date: Sep 2006 Location: Bellville, OH Posts: 14	I appreciate your support, I have not been sure which way to go from here. My Med. Onc has said I need to wait for 2 months to get the PET scan again to see if the nodules- which are all less than 1cm,- most are a couple mm - get any bigger. ( Like I want to see that, before doing something about it. ) I will call and ask about the PET/CT Fusion Scan, I am not sure I know what that is, different from what I had before? I am HER2 Positive 3. I know the heart strength went down from Herceptin use, as soon as I went off, it went back up. The shortness of breath started with that. It is much better than it was, when I was on the Herceptin. They think the hand numbness is from the Taxol- although it got worse as I used the Taxoifin and Herceptin. Swollen hands and feet due to Tamoxifin-so they say. I had asked about the tykerb, but they said that was for post-menapausal?? Although, I have not had a period in a year, now. I dont know if they have any plans about putting me back on Herceptin- My Med Onc said it was not protocal for my age??? How do they do a lung biopsy? What should I do if my Med Onc says he wont put me back on Herceptin since I stopped it? I remember having that discussion with him, beforehand. Thanks in advance for all of your help!! Sincerely-Johnna