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Dear Johnna,
With all you have going on, and 5 wee ones to take care of, I am awestruck that you actually found the time to come to this beloved web site and type a coherent paragraph! Angel girl, you are in the middle of a health crisis and it seems like you don't know where to turn!
Your symptoms...blurred vision, slurred speech, spots on your lungs, dizziness, shortness of breath, swollen hands and feet...are all of concern. Do they plan to biopsy the spots on your lungs? What does your oncologist think? Do they think your shortness of breath, swollen hands and feet might be due to compromised heart function from Herceptin? You are on Tamoxifen; are you er/pr positive in addition to the Her2 neu +++? What nodule did the PET scan reveal?
In addition to being an advocate for a healthy diet, you need to be an advocate for YOU! I suggest you ask your surgeon about getting those lung spots biopsied ASAP! Ask when and if you can get back on Herceptin; and if it is contraindicated for you, ask if you are a candidate for Tykerb...ASAP! Ask your oncologist what he thinks is causing these symptoms....they are of concern; not to mention they interfere significantly with the quality of your life.!
Get some rest, hug your babies and get after your doctors. Stay strong and keep us posted.
Love Kim from CT
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