HER2 Support Group Forums - View Single Post - for those whose cancers have become resistant to chemotherapies...

Becky · 09-10-2006, 08:52 AM

Lani

I read this awhile ago and it is exciting. I wished I knew it when I was on taxol. In the meantime, I have met women in the infusion center who are Stage 4 getting taxotere and herceptin and I tell them to have curried "something" the day before chemo and to make enough to have it the day of chemo and the next day. I am hesitant to tell them to take the capsules (which I do myself now) because so MANY are SO uninformed and they are told to take absolutely no supplements. I cannot take it upon myself to tell them to do so but at least eating it naturally is fine and none of the oncs there will come down on me.

I always, from the beginning, tried to be as informed as possible and you and others on this board have personally helped me tremendously. The more I learn and know the more I am amazed at what other HER2+ women (with mets no less) don't know. I always tell them to get their brain MRI and they say that their doctor didn't tell them to get one. Bizzare (and obviously one of those doctors is my doctor). One woman said she thought it was a good idea (because I explained why) but if her doctor (one I switched from quite some time ago) didn't say - what should she do. I told her to just tell him she wanted one (and she did and is getting one next week).

Thanks for all the good info some of which I haven't found myself.

Kind regards

Becky

09-10-2006, 08:52 AM	#5
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Lani I read this awhile ago and it is exciting. I wished I knew it when I was on taxol. In the meantime, I have met women in the infusion center who are Stage 4 getting taxotere and herceptin and I tell them to have curried "something" the day before chemo and to make enough to have it the day of chemo and the next day. I am hesitant to tell them to take the capsules (which I do myself now) because so MANY are SO uninformed and they are told to take absolutely no supplements. I cannot take it upon myself to tell them to do so but at least eating it naturally is fine and none of the oncs there will come down on me. I always, from the beginning, tried to be as informed as possible and you and others on this board have personally helped me tremendously. The more I learn and know the more I am amazed at what other HER2+ women (with mets no less) don't know. I always tell them to get their brain MRI and they say that their doctor didn't tell them to get one. Bizzare (and obviously one of those doctors is my doctor). One woman said she thought it was a good idea (because I explained why) but if her doctor (one I switched from quite some time ago) didn't say - what should she do. I told her to just tell him she wanted one (and she did and is getting one next week). Thanks for all the good info some of which I haven't found myself. Kind regards Becky