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Old 09-08-2006, 01:28 PM   #1
Sandy H
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Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
A quiet weekend from Tykerb!

Well, the mild diarrhea went into severe diarrhea from the Xeloda/Tykerb. I called oncology and after a few hours of looking into the protocal I was told to go on a clear liquid diet and take imodium every 4 hours. Stop the Xeloda as they seem to think its that. When I am diarrhea free for 12 hours I can advance to the brat diet of rice, bananas, applesauce and toast. I have lost my appetite no desire for food-I know I can stand to loose a few pounds but not this way. These are two side effects of Tykerb. I am having a problem sleeping, another side effect,so that makes me tired. The nurse will call me on Monday to see how I am doing. If this gets better or stops then we will know its the Xeloda and if not then its the Tykerb. I told her I don't remember having diarrhea when I took the Xeloda before but the nurse said it maybe, too much with the two together. Here we are my chest feels and looks better but the other end feels worse!! Can we ever win here? Another quiet weekend who wants to go anywhere with diarrhea? Will keep my little Yoda company. We are still waiting to hear from the surgeon. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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