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Hope,
My heart goes out to you. Don't ever let the doctors give up on you. You certainly aren't ready to give up. Demand that your doctor send you for PET/CT immediately. At least then he/she would know exactly what is going on. There are so many chemo cocktails they could be using until you can get into a Tykerb trial. Please do no give up. You have a lot of support from people on this site. If you are too weak to get around call the local chapter of the American Cancer Society -- they can arrange transportation for you. I'll keep you in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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