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Hope;
I do so agree that it is time to switch onc's or at least to have someone forceful there with you at your appointments to make your demands and needs known. Do you have a trusted advocate who will talk for you, bring you where you need to go, fight for you when you are too tired to fight for yourself. It is time to make known your desires to this trusted individual as you have said that you are tiring. This does not mean it is time to give up, it just means that you need help. I don't know your circumstances....do you have a spouse, parent or child or friend who can help you now? Are you located near MD Anderson where there are the most clinical trials and very imaginative onc's? There are many other similar hospitals as well. What about Avastin? What can we do? We're here for you......who is there for you?
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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