Ditto !
Dear Hope,
Al and Sandy hit it on the head. Time to change the sheets, because the old ones are getting stinky. Also time to let the dogs out, as they say. Show them that you can bark, and WILL bite if necessary. This is your parade they are raining on, and it's time to make the doughnuts.
Well, since I can't think of any more cliches right off hand, just take your argument to them while you still have the fire in your belly to state your case. Let them know that you're tired of everybody sitting around jerkin' their gerkin, and that you need a short term plan to stay afloat until the lapatinib comes through. I know there must be hundreds of women scrambling for it, but that doesn't make your case any less important.
Remind them that the more guinea pigs they have in the EAP, the more "free" data they will have going into their FDA approval request. Granted, the information may not be "pure" enough for a true clinical trial, but we all know that anecdotal evidence and word of mouth go a long way in cancer research. Let us know what you have planned next.
Tom
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