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Sheryl,
You're a bit north of me: Stanchfield (just so. of Mora-north of Cambridge on hwy 65). I'll pass on this oncs name to my own onc and see what goes...Thanks!
From the info I've found on the Tykerb, you could qualify for it in two ways: not responding to Herceptin as well as for brain mets. And the doses for brain mets are in conjunction with Xeloda, if I'm not mistaken.
Yes, I've had five seperate focalized radiation treatments for a total of 16 other brain mets. The most I had at one time was 14, but not over 1cm in size. These were treated in batches of four with the final 6 done in two CyberKnifes two days apart. I was nearly asymptomatic and we kept a two month MRi schedule, so I could do this. It was over a 12 mo. period for the batch of 14.
The CyberKnfie Center in St. Paul had just opened after my three SRS procedures at ? (phooey- Methodist??), in St. Louis Park... I MUCH preferred the CyberKnife experience. (it was my choice to go this way, fighting all the way).
The mets have been throughout my brain, including brainstem/pons - twice. One of the current 8 is also there.
I had mediastinal node/s, spot on lung and pelvis just prior to first brain mets dx. I did well and reached NED from Navelbine/Herceptin. No other tx except for brain since then. I've been very lucky...
sorry to go on, I seem to do that these days...
xoxopatty
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