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Dx 9/03 Stage III grade 3 ER/PR+, Her2neu+++, 3 cm tumor. Lumpectomy w/axillary disection 7 out of 11 nodes+. Did dose dense AC/Taxol, followed by radiation. Started on arimadex, but I couldn't stand how I felt on it, so I was switched to tamoxifen in 5/04. Mets to spine at L1 which caused a fracture. Treated w/radiation and started on zometa and Herceptin weekly for 3 months and have been every 3 wks herceptin and 6 wks zometa. I am thinking of coming off the Herceptin by the end of the year and just watch closely by doing frequent scans. Any thoughts on that? By the way, those who have been doing the vaccine trial in Washington, has anyone noticed increase appetite/weight gain? I have gained several pounds since starting this trial.
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